Autism Aspergers Advocacy Australia (A4) recently sent this letter to the organisations below. We are very concerned about delayed diagnosis of autistic children and the consequent long-term detriment this brings for them, their families and the community generally.
I received the attached response from the NDIS (MC20-002360) on 8/1/2021. The response, from the NDIS on your behalf, refuses to answer legitimate questions (see below) on, or to provide essential information about, the NDIS recognising formal diagnoses of autism spectrum disorder made by state agencies.
The Hon Greg Hunt MP
PO Box 6022
House of Representatives, Parliament House
Canberra ACT 2600
Dear Minister The Hon Greg Hunt MP
Autism Aspergers Advocacy Australia, known as A4, wrote to you on 11/8/2020 and again on 1/11/2020.
Our initial letter expressed concern that while the Health Department created a "National roadmap for improving the health of Australians with intellectual disability", this "roadmap" does not address, consider or even recognise the needs of autistic Australians with mental illness.
Autism Aspergers Advocacy Australia, known as A4, represents and advocates for autistic Australians, their families and associates. Autistic Australians are people who are diagnosed with autism spectrum disorder (ASD).
We are concerned that diagnoses and advice autistic children currently get in Australia are often delayed, or are for "developmental delay" instead of ASD.
A4 sent a Freedom of Information request to the Department of Prime Minister and Cabinet on 24/11/2020
The Department sent its response on 24/12/2020 - see links to the documents below.
Basically, the documents show how little regard the Government has for members of the community, especially the more vulnerable members of the community. The Government's goal was to provide the most minimal response to issues and concerns raised.
I'm sorry but my email system put the email below into my spam folder. I only found it today when I had a call from your section looking for a response.
I indicated on the telephone that while I received a letter from The Hon Ben Morton MP, Assistant Minister to the Prime Minister and Cabinet, the response did not address the single question asked in out letter. As our original letter highlighted our Unanswered Questions Policy, we are bound to interpret the lack of response accordingly (see https://a4.org.au/node/2288).
A4 received an email on 8/12/2020 (at 6.22pm) that contained a PDF file of a letter (reference MC20-033766) dated 28/9/2020 (see below). It seems to have taken over 2 months to email this letter to A4.
Autism Aspergers Advocacy Australia (A4) received a letter (MC20-161556, 27/11/2020 — see below) from The Hon. Ben Morton MP, Assistant Minister to the Prime Minister and Cabinet. The letter references A4's letter to the Prime Minister on 9/10/2020 (see https://a4.org.au/node/2243).
The letter to the Prime Minister asks one simple question:
What steps will you take to cease the war these Government officials are waging on Autistic Australians?
The letter also highlights A4's unanswered questions policy.
While A4 recognises the Health Minister’s “How’s your head today?” effort to support the mental health of Australians through this difficult COVID-19 period, we are concerned that autistic Australians have been left behind again.
Australian governments have a policy to recognise issues relating to the mental health of people with intellectual disability but to ignore the needs of autistic Australians. Minister Hunt and his department officially:
The Hon Greg Hunt MP
PO Box 6022
House of Representatives, Parliament House
Canberra ACT 2600
Dear Minister The Hon Greg Hunt MP
Autism Aspergers Advocacy Australia (A4) has not received a response to the email below. This means A4's Unanswered Questions policy comes into effect.
Re: Response to email to Minister Robert regarding Expert Reference Group to implement the National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorders in Australia [SEC=OFFICIAL]
I received my copy of your open letter to all NDIS participants at 4.02pm today.
Throughout the letter, you use the term “independent assessments” despite the whole disability sector having advised you that the NDIA’s contracted assessments are not “independent”. Insisting on calling them “independent” when they are not independent at all is classic “Yes Minister” conduct. Your failure to acknowledge and refusal to respect the views of the disability community shows you are not interested in improving the NDIS for the people who depend on it.
The Government is creating an Expert Reference Group in relation to its implementation of a National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorder. Following is some of the initial correspondence.
