Stress, despair in care of children with autism

They say that the mother of a child with autism experiences a level of stress comparable to that of a combat soldier.

Grace Fava certainly did.

Her two boys, now aged 15 and 13, were diagnosed with autism at the ages of three and two respectively and the family plunged into near-constant crisis, including a three-year period of faeces smearing and several terrifying occasions when they escaped naked from the windows.

"In the early days it was horrendous," Ms Fava said.

2000 sufferers shut out of NDIS in the ACT

, Social Affairs reporter

The future of the $22 billion Nation­al Disability Insurance Scheme has been thrown into ­crisis after as many as 2000 people with serious mental health conditions and disabilities were shut out of the program in the ACT, the first jurisdiction to fully adopt the new model.

The territory scheme reached its “target” of 5075 clients within hours of full rollout on September 30. Newly eligible people have been turned away and told to wait for a vacancy, which is typically only available when someone in the NDIS dies.

The ACT is a test case for what experts say is likely to happen when the scheme in other states reaches maturity in 2019-20.

letter/email to David Bowen, NDIA CEO, on NDIS Early Intervention

Dear Mr Bowen,

Autism Aspergers Advocacy Australia (A4), the national grassroots advocacy group for autism spectrum disorder (ASD), is alarmed and disappointed by the National Disability Insurance Agency’s (NDIA’s) video on Facebook (see https://www.facebook.com/NDISAus/videos/594542027373310/ … a transcript is given below) about how its Early Childhood Early Intervention (ECEI) Approach is meant to work for autistic children. Disappointingly, this video shows that the NDIA continues to ignore/rejects expert advice and the peer reviewed research literature that defines best practice (and evidence-based) early intervention (EI) for autistic children (see http://a4.org.au/node/843).

The NDIA’s video features Michelle and her children (hopefully not their real names). While the following is critical of the video’s content, it is not intended to criticise Michelle who appears to be doing her best for her children. The NDIA is wholly responsible for the content of the video.

Gender stereotypes have made us horrible at recognizing autism in women and girls

In August, the National Autistic Society called on medical professionals to change the way they diagnose women and girls with autism spectrum disorder (ASD). Ever since the term autism was first coined by Hans Asperger in 1944, it has remained predominantly, if anecdotally, associated with men and boys. As a result, women with the condition may be being overlooked, even as the public becomes increasingly aware of its existence.

What happens when people with autism grow old?

Rebecca Ann Charlton, Goldsmiths, University of London

If you mention autism to most people they will think about children, but it is a lifelong diagnosis. Children with autism grow up to be adults with autism. Little is known about how the symptoms change with age. This is because autism is a relatively new disorder, first described in 1943 and not regularly identified until the 1970s. It is only now that those people first diagnosed are reaching older age that we can start to learn whether the disorder changes over a lifetime.

There have been some suggestions that symptoms may reduce as people get older. These reports, describing fewer difficulties with older age, are often from people with autism themselves and from their families. But how much evidence is there for this? Our latest research provides some answers, and also raises some new questions.

Survey about autistic girls

Yellow Ladybugs is conducting a survey about autistic girls, girls diagnosed with Autism Spectrum Disorder.

More information about the survey, and the survey itself, are at https://www.surveymonkey.com/r/yellowlad...


This survey is focused on the experience of autistic girls, aged under 18 years old.  

We invite parents, carers and autistic girls under 18 to respond to this very important survey.  

Submission to the Royal Commission into the Protection and Detention of Children in the Northern Territory

The Royal Commission into the Protection and Detention of Children in the Northern Territory 
PO Box 4215,
Kingston ACT 2604

email: ChildDetentionNT@royalcommission.gov.au

 

Dear Commissioners

Autism Aspergers Advocacy Australia (A4) is a national grassroots organisation advocating for autistic people (people diagnosed with autism spectrum disorder – ASD).

This submission is about more than autism; it is about Australia’s general lack of expertise and services for people with challenging behaviour.

Paediatrician who hogtied seven-year-old beats assault charge

A GOLD COAST paediatrician who hogtied a seven-year-old patient has been acquitted of assaulting the boy on appeal.

Neville Goodwin Davis was last year found guilty in Southport Magistrates Court of assaulting the child during an October 2012 consultation during which he tied the boy up with rope.

Dr Davis specialised in behavioural conditions and had been consulted by the boy's mother to see if he had Asperger Syndrome.

He said he initially tied the boy to a chair to occupy him so he could talk to the mother

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