Conversations about autism need to include people like me

Amy Smith​

When it was reported that a Blacktown mother had been accused of chaining her autistic son to a bed, chief executive of Autism Awareness Australia Nicole Rogerson urged the community to show compassion to the mother for her desperate situation.

"I am the parent of a child with autism, so I obviously view it that way, and I think there's a bigger story here. I don't think it's black and white. I think we should be grown up enough to have a wider conversation," Rogerson said.

estimates of autism prevalence in the USA 2014 are 2.24% or 1 in 45

In the USA, another report shows autism rates of 2.24% or 1 in 45: see http://www.cdc.gov/nchs/data/nhsr/nhsr08...

These latest values bring the results of three national surveys of autism prevalence into alignment. In addition to the NHIS, the US also identifies autism prevalence values from the Autism and Developmental Disabilities Monitoring Network (ADDM) and the National Survey of Children’s Health (NSCH). The most recent results from the NSCH put autism prevalence at 1 in 50 children. This latest NHIS prevalence of 1 in 45 converges on that finding, and the agreement among the studies strengthens their conclusions.

see http://www.forbes.com/sites/emilywilling...

and

CEDAW: autistic women and mothers

Presentation by Monique Blakemore to CEDAW, United Nations 30th October 2015 

Autistic women are a marginalised sector of the worlds largest minority group, the disabled community. There is an estimated 51,870,000 autistic women worldwide, a similar population to England.

Autistic women are subjected to systemic disadvantage in most areas of their lives. Autistic women experience exclusion socially, in education, in their personal lives, in the judicial system and in access to healthcare. Autistic leadership, exemplified by organizations such as Autism Women Matter, the Scottish Women’s Autism Network (SWAN) and Alliance Autiste, is necessary to challenge stigma and discrimination. 

Real, effective, and meaningful participation of autistic people, regardless of gender, is encapsulated in the phrase ‘nothing about us without us’ and is the aim of the autistic rights movement. Representation of autistic people by groups and individuals is frequently unfunded and unsupported. Unfortunately, ‘tokenism’, which is the illusion of consultation, is over-representative of the autistic advocacy experience. Autistic voices can be crowded out by those of professionals and parent caregivers that love and support us, but may see autism through their own experience. 

Behavioural needs of autistic Australians must be met

A range of initiatives are needed to address autism in Australia, the cost of which to the budget has been put at at least $20 billion a year.

The recent case of an autistic child being sent to a purpose-built cage in a classroom caused international outrage, but teachers are ill-prepared to access professional support when a student needs it, Bob Buckley writes.

TasWeeked: A different way of being

SALLY GLAETZER

KEELAN Law likes reading National Geographic, watching Mr Bean and creating spreadsheets on the computer. He likes his cappuccinos half-strength and extra frothy. Most of all, he loves ice-skating.

The 19-year-old has severe autism. Until recently, he struggled to communicate his basic needs and desires, even to those closest to him.

Wooden box built to 'calm' autistic students at day centre

Australia's largest autism service provider is under investigation after staff built a large wooden box to lock up distressed clients at a Melbourne day centre.

Disturbing images show the box was fitted with a metal lock and kept inside a classroom at Autism Spectrum Australia's (Aspect) site at Heatherton, in the city's south-east.

Massive row over NDIS autism eligibility gobbledygook

Media Release

A major dispute broke out between two autism advocates: they both described the NDIA's eligibility criteria for autistic people as “gobbledygook”, but they are at odds over who said it first.

Bob Buckley, Convenor of Autism Aspergers Advocacy Australia, claims Ms Louise Davies, Deputy Chief Executive Officer from Autism SA, was clearly first to call the NDIA's criteria “gobbledygook”. But Ms Davies says Mr Buckley was first (see http://a4.org.au/node/794).

Preliminary Results of the Australian Autism Educational Needs Analysis

Researchers are currently analysing data from the Autism CRC Australian Autism Educational Needs Analysis. Nationwide 1,468 respondents participated in the survey from every state of Australia and included: 

·         248 educators,

·         179 specialists,

·         107 students with autism (11 -18 years), and

·         934 parents

Advisory panel helping to improve support for Tasmanians living with autism spectrum disorder

Media Release

Jacquie Petrusma, Minister for Human Services 
22 September 2015

Tasmanian living with autism spectrum disorder (ASD) should have every opportunity to reach their goals and to achieve their full potential.

The Hodgman Liberal Government is committed to providing improved support for Tasmanians living with ASD, and that’s why last year we established the Autism Advisory Panel.

Pages

Subscribe to Autism Aspergers Advocacy Australia RSS