letter or email to various people

RE: Escalating risks for people with disability from Omicron and access to RAT and PCR tests

Submitted by convenor on Fri, 7/1/2022 - 12:24

Subject:RE: Escalating risks for people with disability from Omicron and access to RAT and PCR tests [SEC=UNOFFICIAL]
Date:Wed, 5 Jan 2022 21:52:49 +0000
From:Lowe, Jamie <Jamie.Lowe@ndis.gov.au>
To: ...

Dear Bob

Thank you for drawing this to my attention. We endeavour to align all our messaging to Health messaging to avoid confusion and will immediately review our website and social media content to ensure that the information we provide is up-to-date and aligned to Health messaging.

ABC: debate over controversial treatment for autism

Submitted by convenor on Fri, 8/10/2021 - 17:05

The report at https://www.abc.net.au/radio/adelaide/p… is one-sided. It fails to speak to qualified or registered clinicians in Applied Behaviour Analysis. It is well known that any early intervention approach for autism does not suit all autistic children, but getting views from clinicians on one side of the debate is biased. 

creating trust in the NDIA is about more than the so-called Independent Assessments

Submitted by convenor on Thu, 16/9/2021 - 12:41

Minister Reynolds has the NDIA and disability representatives working on rebuilding trust. The NDIA and some parts of the disability sector seem to think this is just about recent conduct.

For the autism sector, there are deeper issues from the outset.

Here is a letter from  A4 to the Minister briefly describing some of the history and issues.

NDIS FOI 21/22-0100 - misinformation and untruths

Submitted by convenor on Thu, 2/9/2021 - 08:53

The NDIA did not respond to a number of A4's concerns. Issues of particular concern were:

"misinformation and untruths" from the NDIA's CEO to NDIS participants about the assessment tools that were planned for functional assessment of autistic NDIS participants for the so-called Independent Assessments, and
inexpert and misguided advice from the NDIA's Independent Advisory Council (IAC) about early intervention for autistic children.

The NDIA did not respond to A4 about its concerns.

Coalition government’s ongoing war on autistic Australians

Submitted by convenor on Tue, 31/8/2021 - 12:53

Dear Senator the Hon Linda Reynolds,

Subject: Government’s ongoing war on autistic Australian

Autism Aspergers Advocacy Australia (A4) deplores media reports (see Annex below) saying that “The Minister responsible for the National Disability Insurance Scheme has blamed an uptick of Australia’s aged, autistic and obese people for the ‘unsustainable’ rising costs of the service”. Your government’s war on autism is unacceptable. We complained about it before and were ignored

Aged autistic people are one of the smallest subgroups in the NDIS: there were just 125 of them in June 2021, just 0.8% of 14K+ NDIS participants in that age group. While their funding level is higher than average for the NDIS, we doubt the numbers in this very small group will increase significantly for some time. We have not found NDIA reporting on obesity; we doubt the NDIS even has reliable data on obesity of NDIS participants. 

FOI 20/21-0660 and FOI 20/21-0835 - NDIA keeps its records with Schrödinger's cat

Submitted by convenor on Mon, 26/7/2021 - 15:04

The NDIA claims in its Participant Service Charter that it wants to be "transparent". However, it avoids making public communication and decisions about some key issues. For example, the following show that it does not want its records about commentary from a disability representative organisation (DRO) on advice it received from its IAC released.

The NDIA wrote a discussion paper on early intervention for autistic children.

diagnoses and advice for autistic children

Submitted by convenor on Sat, 9/1/2021 - 12:55
Subject: Fwd: diagnoses and advice for autistic children
Date: Sat, 9 Jan 2021 12:35:56 +1100
From: Bob Buckley (A4 Convenor) <convenor@a4.org.au>
To: Minister.Hunt@health.gov.au
CC: Chris.Bowen.MP@aph.gov.au, Senator Jordon Steele-John <senator.steele-john@aph.gov.au>, The Hon. Linda Burney MP <Linda.Burney.MP@aph.gov.au>, The Hon. Mr. Shorten MP <Bill.Shorten.MP@aph.gov.au>, The Hon Stuart Robert MP <stuart.robert.mp@aph.gov.au>

Dear The Hon G. Hunt MP

Autism Aspergers Advocacy Australia (A4) recently sent this letter to the organisations below. We are very concerned about delayed diagnosis of autistic children and the consequent long-term detriment this brings for them, their families and the community generally.