Report

NDIS early intervention for autistic children - update 24/12/2021

Submitted by convenor on Mon, 27/12/2021 - 10:41

On Christmas Eve, the NDIS published its consultation outcome for young autistic children: see https://ndis.gov.au/community/we-listen…

Basically, the result of consultation was that:

the NDIS should not proceed with changes it proposed for autistic children; and
families of newly diagnosed autistic children need good information.

NDIA's secret report on PEDI-CAT (ASD) and NDIA misinformation

Submitted by convenor on Tue, 8/6/2021 - 10:11

On the 12th October 2020, Mr Hoffman, the NDIA CEO, wrote a letter to NDIS participants, their families and carers. In his letter, he claimed that

The tools [for the NDIA's so-called Independent Assessment] have been ... used all over the world for many years.

A4 doubted this was true since no such tool existed for autistic people.

Previously, the NDIS was using the PEDI-CAT to assess autistic children. It is well known that this is not a suitable tool which is why the authors of the tool have been developing a revised PEDI-CAT (ASD) for some time.

Interventions for children on the autism spectrum: A synthesis of research evidence

Submitted by bobb on Tue, 10/11/2020 - 11:15

Dear person

Based on your previous interest in our publication the National Guideline for the Assessment and Diagnosis of Autism, I am writing to let you know we have just published a new landmark report for families, clinicians, researchers and policy makers, which synthesises the best available high-quality evidence about interventions for children on the autism spectrum aged up to 12 years.

Report - Public hearing 4 - Healthcare for people with cognitive disability

Submitted by bobb on Thu, 22/10/2020 - 11:43

The Disability Royal Commission released a report summarising its public hearing #4 that is about Health care for people with cognitive disability. The DRC  includes autistic people among people with cognitive disability.

The report focuses on NSW and  describes many poor experiences of autistic people in the health systems. It says:

Experts and advocates also noted the dearth of initiatives to ensure that people with autism can access and receive appropriate health care.

Commentary on IAC's Advice

Submitted by convenor on Wed, 14/10/2020 - 15:36

The NDIA’s Independent Advisory Council (IAC) published a report to the NDIA titled Promoting best practice in early childhood early intervention (March 2020) Paper, herein referred to as the IAC’s Advice. The website says the IAC gave this advice to the NDIA Board.

...

In conclusion, the IAC’s Advice to the NDIA Board on early intervention for children with disability rejects and dismisses the substantial research that shows clearly the distinct and mostly unmet needs of autistic children. It aims to solve misconceptions, problems that do not actually exist, being that:

Report: We look after our own mob

Submitted by bobb on Thu, 20/2/2020 - 09:15

World first research report on Australia's First Peoples experiences of autism

Positive Partnerships is proud to have collaborated with Macquarie University on a new research report titled 'We Look After Our Own Mob: Aboriginal and Torres Strait Islander Experiences of Autism'. On Tuesday 18th February this report was launched at the State Library of New South Wales by the Honourable Linda Burney MP, NSW Shadow Minister for Families and Social Services, Shadow Minister for Indigenous Australians.

New Plan To Support Victoria’s Autism Community

Submitted by convenor on Sat, 7/12/2019 - 00:00

The Andrews Labor Government has released a five-year plan to provide autistic Victorians greater opportunities for choice and community participation.

Minister for Disability, Ageing and Carers Luke Donnellan today launched the Victorian Autism Plan with representatives of the Autism Plan Advisory Group who contributed to the plan’s development.

The Victorian Autism Plan sets out actions to improve the lives of autistic Victorians and their families and carers, backed by $7.1 million in funding.